Palliative-care medicines at home
Palliative care medicines at home can ease symptoms when prescribed; understand anticipatory supplies, safe storage and who to call for help.
How this guide was prepared
Purpose: urgent guidance · Level: detailed
Checked by: Does Your Duck Quack. Sources are linked below; seek professional advice for individual circumstances.
The short answer
What to do first
Palliative care medicines at home can ease symptoms when prescribed; understand anticipatory supplies, safe storage and who to call for help.
Start here: A nurse, doctor or pharmacist can explain the medicine name, symptom it may help, route, storage instructions, expiry or review arrangements and who is allowed to give it. Some medicines are prescribed in advance in case a symptom develops.
Do not wait: Uncontrolled pain, distress or breathlessness needs prompt contact with the community nursing or palliative-care team using its agreed urgent number. If no number is available, contact the GP or urgent-care service such as 111 where available. Call 999 for severe breathing difficulty, collapse or another emergency.
Visual guides
See the decision at a glance
- GP and community nursingGeneral medical care, prescriptions, assessment and planned support at home.
- Specialist palliative teamExpert symptom, emotional and planning support alongside other clinical teams.
- Pharmacy and care providerMedicine supply and agreed administration or observation, with concerns escalated to clinicians.
- Prescribed in advanceMedicines may be supplied for possible future symptoms according to an individual clinical plan.
- Store and record safelyKeep them secure, in original packaging, with the prescription, administration record and contact details.
- Use only as authorisedOnly a trained and authorised person should administer them under the plan; report symptoms and response.
- Review and disposeCheck after changes or death and return unused medicines through the agreed pharmacy or care route.
Scope of this guide
This guide helps you understand the options and questions to ask. It is not personal medical, legal or financial advice. Check the official sources for your nation and seek qualified help for high-stakes decisions.
Call 999 for a life-threatening emergency. For an urgent problem that is not clearly life-threatening, use the official NHS urgent-care route for the UK nation you are in. Have the address, symptoms, onset time, medicines and allergies ready.
Who this guide is for
People receiving palliative care at home and the family members or carers who help keep medicines safe and know whom to contact.
Palliative care supports quality of life when someone has a serious illness. It can be provided alongside treatment and is not limited to the last days of life. Medicines are chosen for that person’s symptoms and plan. This guide explains common arrangements but does not advise on doses, starting, stopping or changing medicines; those decisions belong to the prescriber or clinical team.
What to do now
1. Ask what each medicine is for
A nurse, doctor or pharmacist can explain the medicine name, symptom it may help, route, storage instructions, expiry or review arrangements and who is allowed to give it. Some medicines are prescribed in advance in case a symptom develops.
2. Understand anticipatory or “just in case” medicines
These are prescribed in advance so a clinician can respond if symptoms become difficult, particularly when a person may not be able to swallow. The prescriber decides what is appropriate. Keep the written plan with the medicines and do not give an injection or alter a dose unless trained and specifically authorised by the clinical team.
3. Store medicines securely and accessibly
Follow the label and the nurse or pharmacist’s advice about temperature, light, packaging and storage. Keep medicines away from children and anyone who may take them by mistake, while making the agreed plan available to authorised carers.
4. Know what a syringe driver does
A syringe driver is a small pump used by trained clinicians to deliver prescribed medicine slowly under the skin when another route is not suitable. It is set up and checked by a nurse, who explains what the pump is doing and whom to call if it alarms, comes loose or the person’s symptoms change.
5. Ask about urgent advice and unused supplies
Write down the district nursing, hospice or specialist palliative-care contact and what to do overnight or at weekends. Availability of a dedicated advice line differs by area; if no number is provided, ask the team for the out-of-hours route.
Warning signs and checks
- Prescriber and pharmacy known
- Day-and-night contacts visible
- Administration authority clear
- Storage secure
- Unused medicines returned safely
- Emergency care plan accessible
- Current prescription and purpose explained
- Written plan identifies who may administer medicines
- Storage and expiry instructions followed
- Syringe driver concerns directed to the nurse
- Daytime and out-of-hours contacts recorded
- Unused medicines return route agreed
Common questions
What are “just in case” medicines?
They are medicines prescribed in advance for possible symptoms, so an authorised clinician can act without waiting for a new prescription. The prescriber decides which medicines are suitable and explains when they may be considered. Keeping them at home does not mean the person must use them.
Who can give anticipatory medicines at home?
The prescriber and local care plan set out who may administer each medicine. A district or community nurse may visit, and some family carers may be trained and asked to help if they choose. Do not assume that having the medicine means a relative can give it.
What should we do with unused palliative medicines?
Do not keep old medicines indefinitely, share them or put them in household rubbish or drains. Ask the pharmacist or the prescribing team how to return the particular medicines safely; arrangements can vary, especially for controlled medicines or equipment. Keep them secure while awaiting advice and make sure an out-of-date supply is not mistaken for the current plan.
Is there always a round-the-clock palliative care number?
No single UK-wide number is provided for every person. Some local nursing, hospice or specialist teams offer day-and-night advice, while others use an out-of-hours GP or urgent-care service. Ask the team to write down what to do at night and at weekends.
Differences across the UK
Community palliative-care provision, prescribing and urgent contacts differ across UK nations and local services. Palliative and community nursing services are organised locally by NHS bodies, health boards and HSC Trusts. The name and availability of a hospice or specialist team, including any round-the-clock telephone advice line, vary. In England, Scotland and Wales ask the district or community nursing team and specialist service; in Northern Ireland ask the GP or HSC team coordinating care. The person’s own plan takes priority over general information.
Uncontrolled pain, distress or breathlessness needs prompt contact with the community nursing or palliative-care team using its agreed urgent number. If no number is available, contact the GP or urgent-care service such as 111 where available. Call 999 for severe breathing difficulty, collapse or another emergency.
Primary sources
The publisher checked this guide against the 8 official sources below. This is an editorial source check, not approval by a clinician, lawyer or benefits adviser.
- NHS: End of life care at home
- NICE: Care of dying adults
- NHS inform: Getting palliative care in Scotland
- Guy’s and St Thomas’ NHS Foundation Trust: Anticipatory injectable medicines
- University Hospital Southampton NHS Foundation Trust: Just in case medicines
- NHS: Palliative care
- NHS: When to call 999
- NHS: When to use 111
Related guides
- Advance care planning across the UK
- End of life care at home: what to expect, support and after a death
- Cancer treatment and support at home: practical guide
- Hospice care explained: support at home and in a hospice
- Controlled drugs at home: safe collection, storage and return
Editorial note: By Does Your Duck Quack.
